One of my granddaughters has been diagnosed with this diseas. Gosh here we are with her at the hospital, she is in isolation because of severe infection.
There is now much learning to deal with this for her and us the rest of her life. She is trying very hard to be brave but at 21 yrs old, she is still so young I think, to deal with this.
Do you know anyone who has it? Can you advise us a bit of the day to day life of this illness?
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